Its an important need for individuals / families sharing similar or same problem get together an share problems , learn from each others experiences. A Professional management of this meetings increase the benefit of all participants .
Chronical disease management, disabilitiy , physical appereance difference (congenital or after trafic / work place accident) , addiction consultation, rare seen diseases management, genetic health problems … those WHO confont these problems needs special individuals and families needs support to avoid also burn out and for empowerment. Especially parents with babies diagnosed Apert sydrome, Crouzon syndrome, Pfeiffer syndrome , Treacher collins syndrome etc. mostly need additional psychosocial support and consultation.
These meetings are in Turkisch – German – English languages . Please get in contact to learn more about social support groups and meetings.